Javier Castro, Cardiología y Cirugía Cardiovascular Congénita y Pediátrica, Fundación Cardiovascular de Colombia, Floridablanca, Colombia
Doris C. Quintero-Lesmes, Centro de Investigación, Fundación Cardiovascular de Colombia, Bucaramanga, Colombia
Ma. Constanza Basto, Cardiología y Cirugía Cardiovascular Congénita y Pediátrica, Fundación Cardiovascular de Colombia, Floridablanca, Colombia
Claudia Flórez, Cardiología y Cirugía Cardiovascular Congénita y Pediátrica, Fundación Cardiovascular de Colombia, Floridablanca, Colombia
Sara Mendoza, Cardiología y Cirugía Cardiovascular Congénita y Pediátrica, Fundación Cardiovascular de Colombia, Floridablanca, Colombia
Diana Fajardo, Cardiología y Cirugía Cardiovascular Congénita y Pediátrica, Fundación Cardiovascular de Colombia, Floridablanca, Colombia
Víctor Castillo, Cardiología y Cirugía Cardiovascular Congénita y Pediátrica, Fundación Cardiovascular de Colombia, Floridablanca, Colombia
Anderson Bermon, Centro de Investigación, Fundación Cardiovascular de Colombia, Bucaramanga, Colombia
Introduction: complex congenital heart diseases (CHD), especially hypoplastic left heart syndrome (HLHS), are highly vulnerable during the interstage period, and home monitoring programs are used to prevent morbidity/mortality. Objective: to describe the creation and execution of an innovative Home Monitoring Program (PMD) adapted for Colombia. Method: caregivers were provided with a smartphone with an application, oximeter, scale, training, and education. Follow-up was conducted in-person/virtual audio/video. The control center reviewed monitoring data, and the PMD provided continuous education reinforcements through every contact with caregivers and via social media/website. Results: fifty-eight patients were identified as possible candidates, 4 (7%) died before discharge, 37 (64%) met exclusion criteria. Seventeen patients were discharged with home monitoring, and five did not complete monitoring. The program conducted an average of 217 days of monitoring, with 1,381 routine audio follow-up calls, 550 video calls, and 102 in-person controls. A total of 2,382 timely alerts were detected and addressed, with 94.5% managed via audio calls and 40 instances requiring hospitalization. Seventy percent of patients in the PMD reached the second intervention. Conclusions: modern telecommunication enabled the adaptation of successful PMD to a feasible project that could support patients with complex CHD during the high vulnerability interstage period, maximizing the success of surgical interventions and the efficacy of limited resources in our region.
